Day 65

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The day you took your first ride in an ambulance and an elevator, the nurses at RCH said you were moving to a penthouse. A small town girl moving up in this world. 

65 days alive and you already have places to go and people to see!  

The reality of it all was that we were headed  to the unknown yet again. A place that had become our “safe place” was no longer. Now we needed to adapt to a new hospital a new room, new nurses and doctors. We are further away from home and each time we leave you we feel farther away from you.  

This time we were sent over to Children’s Hospital because they need to perform a procedure to see if there is a twist in the bowels. If there is they will need to perform surgery.  

The moment we found out, we asked ourselves how much more can we take, how much further can we go? We then began to pray and pray and pray and  In that split second we realized that it wasn’t about us, it was about you. This was your life and your journey. You have accomplished and overcome SO much so far imagine what more is possible! YOU inspire us every day to be strong and when we feel we can’t take it any more we remember how much you have taken and overcome. 

If we look deeper than just our initial feelings we are able to see so much more, so much hope and so many blessings, had that specific doctor not been there that morning to send you off who knows what would have happened, we feel blessed that things lined up the way they did and we feel hopeful that if we need to proceed with this surgery god is always watching over.